Day 11 – Caleb, To Infinity And Beyond!

Caleb's Dad ~ 21st November 2010

This is the day that the Lord has made.  I will rejoice and be glad in it.”

That is a fitting scripture for this morning.  In our family, Sunday is always a celebratory day.  We are thankful for the ministry of Christ, the life of Christ, the death of Christ, and most of all the resurrection of Christ.  As we have always believed, if Christ had only died for us, for our sins only, what good would forgiveness of sins be, if there was no ending result for that forgiveness?  

Forgiveness, even the cross, is not the end, but the means to an end.  The end of course is the resulting relationship that we have with God.  And the goal of that forgiveness is the restoration of all things and our being gathered together in heavenly community with the Father, Son, and Holy Spirit, and all the holy ones of ages past. 

For the boys Sundays were also a time to have fun at daddy’s church! J I serve at a local congregation where the main worship area has long aisles that go downhill toward the stage and pulpit—the perfect place for pretending to roll down a hill.  Every Sunday the kids would just be itching for daddy’s sermon to be over that way they could get up and run around the church auditorium, get up on the stage, and every now and then do what they both knew they are not supposed to do—get up and start talking/shouting from the microphone! My kids definitely bring life into the church for sure.

I remember on a couple of occasions where I would be giving an invitation message at the end of service, and Caleb would come forward…not for prayer…but because he knew mom’s hands were tied holding Connor and making Colby be still.  He would run up and throw his arms up into the air. And so there I would be, singing “Come Unto Me” while holding my songbook in one hand, and Caleb in the other.

I am not sure how people in the church feel about it, but I love moments like that. I love kids in their own element, living out exactly how they feel, saying what they think, and being real and transparent.

So often we become so concerned about what others think about us that we wear a mask, especially when it comes to church life.  Kids on the other hand are unabashed in their simple love of Jesus and they are not afraid to live out their joy in whatever way they see fit. What to some may seem annoying, in my own mind, was the purest parable of the love between the Father and the Son.  While we may be going through the motions of singing, partaking of the Lord’s Supper, preaching and what have you, all the little boy in the third row (Caleb) could think about was to be up there with his daddy.  

That was all he wanted and that was all he needed. Perhaps that is why Jesus compared the kingdom of heaven to little children, and told us older people that faith in its simplest form is to be child-like, where all we want is to be with our Daddy; food for thought for sure.

Perhaps it is fitting that Sundays are a day of rest for a lot of families, because today (Sunday), it was apparent that Caleb needed and wanted a day of rest. He didn’t want to get up this morning.  We have seen a pattern with Caleb that on the weekends, he is pretty much tuckered out. I don’t blame him.  I am not the one going through the exercises but I can guarantee you that if I were doing half of what he is doing every day then I would be tired too. He goes through hours of hard exercise daily and he is only 2 and 1/2!  

So to make today’s post a little shorter, let me summarize by saying that Caleb didn’t want to do anything today in all of his therapy sessions. In fact he skipped his last session (music), because he had just fallen asleep and was in a good deep rest when it was time to get him up.  We didn’t have the heart to disturb him, and to be honest the therapists told us that his rest was just as important as his therapy.  And if Caleb was that tired then it was obvious that his body needed the rest. And so, he slept.

We did have a notable event that happened earlier in the day after his morning routine.  During chapel time when we were worshipping, the therapist had him sitting on a small stool with his arms propped up, sitting on a larger stool in front of him.  She had placed some toys on the stool, encouraging him to play with them. Again he was so tired that he really wasn’t interested in the therapy. In fact it brought back some more church memories as I was watching him nod off with his head in his hands.  Kind of funny as daddy’s sermons seemed to always have the same affect. J

At one point when he had woke up and regained some of his composure he ,by chance,  felt the rubber tires of a monster truck that had been placed in front of him. He was interested for a few seconds and proceeded to run his hand over the truck, grasping it enough to run it back and forth over the surface of the stool.  He revved his little engine a little too much because after thrusting his hand one last time, the monster truck drove off the stool to the ground.  After that he wasn’t interested in the truck anymore.  Again, he started to nod off and get sleepy.

It is interesting how you can perk up with the right motivator. On our way back from chapel, Nan (Tiffany’s mother who had come into town for a couple of days to see Caleb and to help us out) wanted to present Caleb with one final gift before she left (she had already showered him with a lot of gifts the day before….(I know, what are grandparents for right?) J  

The big gift today that caught his attention was a brand new Buzz Lightyear riding toy. He had already grown accustomed to having fun with the little red tricycle that is used in his occupational therapy sessions, but this….this was Buzz Lightyear! This was a toy where he could put his feet down and push, he could push buttons and make lots of noise, and make little lights light up. 

We sat him down on his new “spaceship” and he immediately was familiar with the workings of a riding toy. Holding my arms in front and behind him, he pushed forward with his feet, making himself glide backwards.  I was amazed to see him do this. It was as if nothing had ever happened.  This is exactly what he likes to do on riding toys.  When he gets on them he immediately pushes himself backwards a few times, then forward, then backward, and so forth.  It was as if all of it came back to him, and he was off to the races! 

We let him push himself out into the hallway.  For safety’s sake, I went down to the gym and borrowed the little foam helmet that he uses with the tricycle.  After strapping on the helmet (which I could tell he is getting more aware of his surroundings because he hated the helmet and kept trying to pull it off), he was ready to roll.  He began kicking his feet, propelling himself forward.  With every advance down the hall, his face lit up with joy and excitement.  Laughter would burst out as he was tickled with delight. I was close by with hands ready to catch him if he got ahead of himself at all. But the entire time, he kept his balance and he did great.  We traveled down to near the end of the hall and back again. Nan, too, was bursting with joy, as this had been the first time she had seen her grandson since the days when he was at T.C. Thompson still in ICU—a different Caleb for sure…a miracle in progress.

After we made it back to our room, I was excited to see him finish his little journey and so in the moment I thought, “Hey let’s see if he will give me a high five.” I knew that he had learned to move his right hand in a slapping motion, and so I wondered if this time he would be able to put two and two together and realize that he could give me a high five if he wanted to. So I spoke to him with praise and said, “Good job little man.  That was awesome! Give me a high five!”  And with that, Caleb now swelling with pride, gave me his first, real, of his own initiative…high five.

As the saying goes, all good things must come to an end.  We were saddened to see Nan having to go, and Caleb was saddened to have to get off his Buzz Lightyear riding toy and eat dinner. As it turned out, it didn’t take long for Caleb’s newfound burst of energy to fizzle out.  He hadn’t even finished dinner before he began dozing off again. He also grew fussier and more agitated as it got later.  

One issue that he has been dealing with for a while know has been with constipation.   The doctors told us that it was probably due to all the medications that he had been on and is still on. But regardless, by the end of the night, we had one very tired, very upset little Caleb, who simply wanted to go to sleep.  So after a small dinner, some medicine for the constipation, and a little cuddling, Caleb was fast asleep.

Rest well little buddy.  Good night.

Our prayer concerns for tonight are the same…please pray for his eye sight, his ability to speak, his ability to be more aware of his surroundings, and his use of his left side. 

Blessings

094Would you consider adding Caleb to your church and personal prayer lists? Also a fund has been set up to help offset Caleb's ongoing medical expenses and related costs. Thank you for your love and support! Donations via PayPal can be made by clicking here: 

Paypal_button1

9 Comments

  1. Niks

    November 23rd, 2010 at 12:11 am

    I have not posted before, but I have been reading your updates of sweet Caleb. I get excited each night as I see that a new post has been made! A dear friend of mine has a tiny baby girl (Autumn) with a much worse prognosis… I don’t want to post too much, but I did want to say that reading about all of Caleb’s progress has given me even more faith for Autumn. I love seeing all the news things he is learning and even the old things he is remembering. It warms my heart to see him doing so well! Through the smiles and tears that frequently accompany your writing, I sit back,in the end and have restored hope for both of these little ones.

    Caleb…. keep on rocking and rolling little guy! You are doing great!

  2. heather davis

    November 23rd, 2010 at 12:36 am

    way to go little caleb yay!!! keep up the great work !!!

  3. Donna Wood

    November 23rd, 2010 at 4:46 am

    I am so glad to see the posts as I awake this morning. I have missed them, and all the while understand the reasoning for not seeing them. I have prayed continually for you all and in the recent days, many prayers for your rest and well-being. Tim and Tiffany, you are both such wonderful parents to all the boys and I am so touched by the love, strength and encouragement you give to Caleb (and me!).

    I’m glad Caleb was able and wanted to rest on Sunday…we all need rest and even in that, Caleb is helping to guide me. I must admit that when I read the part of Tiffany’s mom seeing Caleb for the first time, I was so very happy for her and somewhat envious at the same time, as my last memories of Caleb are much of what hers were. I am counting down the days till I see you all. You may never get my arms unwrapped from around you. LOL. I also especially was moved by your description of the way children are real and transparent and the relationship between the Father and Son. Those are words I needed to read on this beautiful day the Lord has made.

    My sweet friends, know I love you and thank you so much for sharing this journey with the world. I know that God has called you to do so…as He is glorified, we are given huge insight into our Father’s heart and the depths of His love for us.

    Much love to you all!!!

  4. November 23rd, 2010 at 6:36 am

    I have been following your updates from the beginning, and praying for Caleb. I have been very pleased to see his probress. I hope Mom and Dad are holding up well. I know it is hard for you to deal with all that is going on. It is wonderful to see your patience. God bless you and Caleb!

    John

  5. November 23rd, 2010 at 6:56 am

    This is beter than any Harry Potter novel. I anxiously look forward to each new chapter. I certainly understand when you are not able to write, but I really miss a day without news. God has blessed you in so many ways, but we have all been blessed by your ability to tell your story.

    Way to go Caleb! You make my day start better hearing about all the great things you are now doing. Keep up all the hard work. God is blessing us all through you and through the strength of your parents. I love all of your pictures, too, because they show us how much better your are getting. Tell “Nan” that she looks great. I haven’t seen her in a long time.

  6. Rob Davis

    November 23rd, 2010 at 5:02 pm

    My heart fills with joy with each new posting that you share with us, Caleb’s extended family, detailing the progress and sharing those wonderful notable events. As I read each paragraph, my eyes fill with tears of joy as I praise God for bringing Caleb this far in his journey to full recovery.
    I pray blessings on Caleb for strength in his therapy sessions and the recovery of his sight, speach, and motor skills. I pray for you, Tim and Tiffany, for the strength, guidance, and understanding in helping Caleb in his recovery. You are wonderful parents. I pray for Colby and Connor… you are great brothers for a little boy to have.
    Caleb, hang in there little buddy… you are doing a fantastic job !!!!!
    God is Great !!!!!

  7. Kim Wheeler

    November 23rd, 2010 at 10:29 pm

    I finish every day with reading your posts and then praying for Caleb and your whole family. You all are such an inspiration to so many of us. I truly feel God putting on my heart the need to be dligent in prayer for your sweet Caleb and letting everyone know about him and your family that gives me just a few minutes to talk about it. I am so thankful to get to witness your families amazing journey. Thank you so much for sharing your joys, challenges, and love of God with so many. I so hope you and your family have a wonderful Thanksgiving, as well as, all of the dear sweet children and families facing many of the same challenges you are at Scottish Rite. Just wanted you to know how much we have all come to love you and feel much hope and faith for Caleb’s complete healing.

  8. Kristen Childress

    November 23rd, 2010 at 11:29 pm

    I am really enjoying reading your posts! I’m sure it’s hard to make the time to write them. You and are your wife are extraordinary parents and are great examples to all of us. My husband and I are expecting our 1st child soon, and have learned a lot about loving kids through your introspection.
    Take care, keep up the good work!

  9. Leesa Wright in Hixson Tn

    November 24th, 2010 at 12:23 am

    AHHHHH!!!! How I looooove reading these updates!!! My smile lights up my house as I read them! I have been sharing your story just this week. It was so awesome to be able to tell how God was working so miraculously from the very beginning. I would very much like to hear more about how he was preparing you and Tiffany for this.

    I am loving seeing the pictures of Caleb playing UNASSISTED! That is so amazing! Every time I read an update I am just as surprised as I am when I read the last one….even though I shouldn’t be. Caleb is progressing at the speed of sound! I feel so privileged to be a witness to his journey. I am so thankful The Lord impressed upon me the need to go and talk to you.
    I just saw that Colby and Connor have joined you. I know your hearts are full now. I know you all will have a wonderful Thanksgiving. God Bless!

    Much Love
    The Wright Family

Leave a Reply