Day 2 – Caleb Goes For A Ride

Caleb's Dad ~ 12th November 2010

We awoke this morning with our now normal daily occupational therapy session—normal routines like getting Caleb dressed, combing his hair, brushing his teeth, etc. Not long after this, we began another full day of various therapies.  I am proud to say we had another wonderful day full of new things that we saw Caleb doing.

Caleb got his first real bath today, and mommy was privileged to be able to do it.  He seemed to really enjoy it.  He was a little unsure about the board he had to be strapped to, but after the water started, he was pretty happy.  He got clean and mommy got a little wet, too!

One highlight of the day was when we went to physical therapy. I came in and was overjoyed to hear the therapist say, “Hey Caleb, want to walk to daddy?” We found out that Caleb still remembers walking.  The therapist took Caleb into her arms, and supporting his weight, placed both feet on the floor and stood him up. Just the sight of seeing him upright and on his feet was enough to take our breath away.

But, what we saw next indeed did take our breath away.  “Ok Caleb, kick your foot out, come on…lets walk to daddy, let’s show daddy how you can walk.” And with that, we saw Caleb take his first steps.   Feelings of joy swarmed inside as we were shouting inwardly and outwardly, “Hooray!” I think for once our smiles rivaled that of the best of cheesy smiles that we have seen from Caleb.

He wasn’t able to support his weight as his legs and feet were very weak, but he was able, at times, to get the motion of walking.  He did put one foot in front of the other.  After what to him must have been a long grueling process, he made it to the finish line, and collapsed into a great big hug from daddy.

Next, Caleb got to have a little fun.  One of the ways they teach and encourage walking is to let the kids take a tricycle ride.  They put a little helmet on Caleb, and strapped his feet to the peddles.  We wheeled Caleb all around the third floor of the hospital.  Now Caleb may not be able to speak yet, and yes he may not be able to completely get his facial expressions to go the way he wants them to go, but you could definitely tell he was a happy little camper being pushed around on that tricycle!

One thing I noticed is  with the exception of one time, Caleb was actually able to keep his hands on the handle bars the entire time. So, we rode the tricycle, came back and then tried the walking motion again.   And again, he did pretty well.  He would cross his feet every now and then, but overall he was still placing one foot in front of the other—all good signs of a great start towards walking.

Next we were off to speech therapy where again, we were tasked with working with him on his eating.  Yesterday it became pretty apparent that Caleb was still the same old Caleb when it came to his interest in eating.  We could tell he wanted to eat, but today we really could tell.

In two days he went from swallowing little bits of water off of a spoon to little bits of juice off a spoon, to today sipping large amounts of juice off a spoon and now even eating small amounts of yogurt off a spoon! The therapist was impressed with his ability to swallow and felt  he was well on his way to being able to eat again one day. At one point near the end of our session the therapist wanted to push him a little to see if he could suck juice from a straw, and he almost did! He was able to get the liquid nearly to the top of the straw.  And of course the entire time we were doing the eating and tasting, Caleb was quite the happy little man.  I think eating therapy is going to be his favorite!

For occupational therapy today, we looked more closely at his abilities and limitations in terms of his eye sight.  The therapist believes  his left eye is worse than his right eye, which is why Caleb tends to want to look to the right. He is also weaker on his left side and really strains to use his muscles on his left side.

We played with various toys which were meant to stimulate his senses—toys that made sounds, music, that lit up, vibrated, and toys that had a cause and effect, like toys where you can push a button and then something happens, etc. Caleb loved playing with the toys.  Often he would smile when he was doing something he liked, and of course he loved mommy and daddy there playing with him too.  Now that we have a better understanding of what his strengths and weaknesses are, Tiffany and I are going to focus on his left side with stimulation, muscle training, etc.

Usually our day ends by about 3:00pm – 3:30pm, but we have personally chosen to not stop the therapy even after our daily sessions.  After we get back from therapy, Tiffany and I have developed an evening routine with Caleb.  We come back, and let Caleb nap anywhere from between 1 and 2 hours, then we wake him up, do some range of motion with him (stretching), then we lay a mat  and have some play time (this is something we always did at home when I came home from work, i.e. play on the floor with daddy time).

During this time we tend to reinforce the things  we have been working on—utilizing toys, techniques, etc. to play and work on things at the same time. After play time, we let him relax and have some TV time, then we read to him, and then its bed time. During this time we also reinforce other things like his juice tasting, practice standing, music therapy, etc.

Caleb continues to show signs of becoming more aware of his surroundings.  He has become very purposeful in his movements—scratching at his incision on his tummy, scratching at his wound on his head, etc. He is also smiling every day, and smiling more often, which we love!

Here is some big news.  They told us today that because he is doing so well, we may not have to be here for 2 months.  They said that we may only have to be here for 30 days or so.  We are so encouraged by that, and encouraged by the fact we may just be back home in time for Christmas!

One of the things they do here at Scottish Rite, is they make goals for each week of therapy, and this week Caleb has already met his goals.  Next week the things they want to see Caleb do is continue to swallow so he can perhaps move up to pureed food. They want to see him balance more so we can work up to him sitting upright on his own, and they want to work on strengthening his right side.

Things have settled down tonight. I am so filled with joy for our little boy.  I am also saddened because of some news I heard today.  Last night we heard the cries of a little child about the age of Caleb who is a couple of doors down from us, and for hours, he was crying out for his mommy and daddy….and no one ever came.

I learned through the grapevine that the child was there alone.  His parents dropped him off and then left.  He is only 2 years old.  The nurses come by and spend as much time as they can, reading books, talking to him, etc. but they simply don’t have the time and there aren’t enough volunteers to stay with him.  So there he stays, often crying alone.  I am not sure if it would be a HIPAA violation or not, but I have offered to go in there and read at least a bed time story to him, if they will let me.  Please pray for that little boy.

One of the things that I want to do every evening when I write these posts is give you all things you can specifically be praying for.  Tonight I ask that you begin praying that Caleb will meet his goals for next week, as well as pray for his eye sight and speech.  We long so much for him to be able to see and to speak to us.

094Would you consider adding Caleb to your church and personal prayer lists? Also a fund has been set up to help offset Caleb's ongoing medical expenses and related costs. Thank you for your love and support! Donations via PayPal can be made by clicking here: 

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33 Comments

  1. Sandy Hays

    November 13th, 2010 at 4:34 pm

    OMG…That poor little baby all by himself! I cannot imagine!!! I’m thanking God for your Little Caleb…The hurdles that he has already overcome are HUGE!!! God Bless YOU ALL!!!

  2. heather davis

    November 13th, 2010 at 4:41 pm

    that is such wonderful news way to go caleb keep up the good work !!!!

  3. Nelda Bilbrey

    November 13th, 2010 at 4:45 pm

    all i can say is hallaujah.. praise the lord

  4. Angie Fields

    November 13th, 2010 at 4:47 pm

    You both seem like very wonderful people. I will continue to pray for Caleb and your family. I always make a point everyday to check his progress and updates. It makes me so happy I cry to know how well he is coming along. I could not imagine how hard everything is on you all. Prayers to you all and the little one down the hall as well. Im a mother and could never leave my baby girl like that. Things like that make me wish my Paramedic pay was enough to house all the little ones like that. GOD BLESS!!!

  5. November 13th, 2010 at 4:55 pm

    We are friends with the Jacobs and they keep everyone informed on your son. Thank you for sharing your journey with everyone and we will continue to pray. We will also be praying for the other little boy and I’m thankful that he has people like you and your wife there to show love to him.

  6. Steve & Sylvia

    November 13th, 2010 at 5:11 pm

    Thank you again for sharing this day! We continue to pray for Caleb and his very speedy recovery to 100% health.

  7. April Camacho

    November 13th, 2010 at 5:14 pm

    I am so happy to hear this wonderful news. Caleb you have came along way lil fella! Everyone loves you baby! xoxoxox April camacho and Family from Sparta TN

  8. November 13th, 2010 at 5:14 pm

    We are so excited that Caleb is smiling more and able to do more. When I saw the pictures of him smiling all I could do was cry. He has come a long ways in a short time. Thank you Lord Jesus for this progress that Caleb is making. Give his parents the strength to get going. Lord I know what they are going through and I just pray you will give them the peace that is pass understanding. Lord this is such a great blessing to see the strides he has made. Help him to be home by Christmas. In Jesus’s Name –Amen

  9. Chuck Payne

    November 13th, 2010 at 5:14 pm

    Amazing… how amazing!! Please continue to offer prayers of Praise and continue those prayers for Calebs continued recovery! God Is Good!

  10. Jennifer Grayson

    November 13th, 2010 at 5:29 pm

    Way to go Caleb!!!!! Such great improvments in 2 days!! As I am ecstatic for u all I am saddened by the story of the child down the hall. May god bless him with someone to be by his side.

  11. Jeannie Eldridge

    November 13th, 2010 at 5:47 pm

    YAYYY love hearing great news from our lil buddy,Calebs Run Rocked,it was awsome and it turned out to be Calebs Day!!!! We love you Tim and Tiffany,Colby AND Connor,We cant wait to come and visit,hang in there our prayers are working……

  12. Melissa

    November 13th, 2010 at 5:55 pm

    I am truly very happy for Caleb and your family. I pray for him everyday and I love hearing how well he is doing.

    Reading about that other little boy breaks my heart. It really hurts me to know that there is no one there for him. Please let us know if there is anything at all that can be done for him.

  13. Julie Valenzuela

    November 13th, 2010 at 5:55 pm

    Praying daily. What a brave little boy and what a wonderful family. You are truly inspiring in your strength, belief, and dedication.

  14. Marilyn Brantley

    November 13th, 2010 at 5:56 pm

    Dear Caleb, I am still praying for you and I know you are going to be ok. Keep up the good work…..

  15. Harriet

    November 13th, 2010 at 6:04 pm

    Wow, what progress. Hope and pray for some more goals for Caleb to achieve next week. Great news. God Bless!

  16. Dayna Sykes

    November 13th, 2010 at 6:04 pm

    Another GREAT DAY Caleb!!! You are doing so good. Your mommy and daddy are working very hard to bring you home sweet boy. Today ALOT of people came out to celebrate your life and the wonderful progress you are making. How wonderful it is that you have touched so many lives. We all love you and Brodie asks about you every day and wants to know when you are coming home. He would love a play date with you and Colby…it’s been a while. Love you Caleb, Tiffany, and Tim! We are praying for you daily as well and Colby and Connor. Get some rest.

  17. Karen Galbraith

    November 13th, 2010 at 6:14 pm

    Such wonderful news. Just have to say Thank you Lord for such a great blessing. I know that Caleb will meet all of his goals. So sad about the little boy down the hall having no one. But, we all know that God is always there with us when others leave us. I lift up that little boy in prayer as well tonight. So glad God has Caleb in his hands. We will remember all the family in our prayers.

  18. sandra hausman

    November 13th, 2010 at 6:20 pm

    I worked with emily at starbucks. I first heard about your son on her facebook page. I believe that God has his hand on caleb and he will be healed.
    The miricles I read everyday in your blogs give me more faith in my own life. I have learned so much from your family experience that faith and prayer is powerful. Your family is with me always.

  19. Gayle Oliver

    November 13th, 2010 at 6:30 pm

    That’s such wonderful news! … I’m saying extra prayers tonight for your little friend up the hallway …. I cant imagine … I just cant imagine …

    Rest well … Tomorrow’s another glorious day! .. Much love .. <3

  20. Janice Roberts

    November 13th, 2010 at 6:31 pm

    wonderful news on caleb’s progress. thank you so much for taking time to update all of us and giving us specific things we can pray for. may God continue his rich blessings on your family and also on the other little boy. what a sad story.

  21. candi skiles

    November 13th, 2010 at 6:33 pm

    tears to my eyes and joy to my heart! The Lord is working here Brown family. Eagle’s wings….eagle’s wings.

  22. Tina Hicks

    November 13th, 2010 at 6:54 pm

    I do not not know you all personally but as soon as I heard the story, I immediately started praying and believing. Caleb you are such an inspiration to me little man, and so are your parents! Thank you so much for the updates, I will specifically pray that Caleb meets all his goals next week and for his speech and eyesight. God Bless each and every one of you! Glory be to God because Caleb has come such a long way! He is indeed a working Miracle!

  23. Tara Abney

    November 13th, 2010 at 7:09 pm

    Yeah Caleb!! Keep up the good work. I’m praying for you and your family every day buddy. You are an inspiration!

  24. Donna Wood

    November 13th, 2010 at 7:42 pm

    How Great our GOD is!!!!!!!!!!!!!!!!! Whew….what an awesome day – both for ya’ll in Atlanta and for everyone in Alexandria, TN. I was so blessed to see the love and support for Caleb at the concert and I hear the run went well also. Tim and Tiffany…I love you my dear sweet sister and brother. Caleb couldn’t have two better parents to love and encourage him. God knew exactly what he was doing when he joined you all :)

    My heart breaks for the little precious baby down the hall. I can’t even try to understand, but what I do know is that our Father is taking care of that baby also. So, I’d like to encourage everyone that when you pray for Caleb, please pray for that baby also.

    I love you Caleb, Tim, Tiffany, Colby and Conner.

  25. Paula Wilkes

    November 13th, 2010 at 7:50 pm

    Caleb will continue to be in our prayers. We will also pray for the little one down the hall. May God wrap his loving arms around that child. Continue to keep your strength and faith. The wonderful news of Caleb’s rehab is so uplifting. God Bless you All.

  26. Diane Harris

    November 13th, 2010 at 8:15 pm

    Way to go little buddy! Our prayer is that you continue to amaze the doctors. I also pray that the parents of that sweet little boy down the hall will come back and be with him soon.

  27. Katie Mealio

    November 13th, 2010 at 8:48 pm

    YAY! go Caleb! He is doing so well. Hope he countinues to get better!

    Love
    Katie

  28. Camille,Henry, and Baby James

    November 13th, 2010 at 9:17 pm

    This is awesome to hear! Keep it up Caleb!!! Sending love and positive thoughts your way from myself and my family!!

  29. brandy

    November 13th, 2010 at 9:24 pm

    GOD is good. Rejoice in his name.Prayers are with you all and the little boy down the hall.

  30. Leesa Wright in Hixson Tn

    November 13th, 2010 at 10:51 pm

    I knew Caleb was doing a great job and the people there did a great job but my goodness…I had no idea!!!! Caleb, you are simply amazing! You keep on surprising everyone!! I know your Mommy and Daddy are over the moon happy! Praise God!

    I will be praying for that sweet baby 2 doors down. Maybe the more you talk about it the more people will hear about it and the more people will volunteer. Hopefully they can find someone to come and comfort that sweet baby. That happens at TC Thompson’s too unfortunately. I couldn’t imagine know my child was crying for me.

    So proud of Caleb! Sending you guys big hugs! I know you are both so happy!

    Much love and big hugs!!!

  31. November 14th, 2010 at 11:07 am

    Thank you for taking the time to keep us all informed on Calebs progress. We are still praying for all of you and we will also pray for the little one down the hall. It is just so sad for such a little guy to be alone. We will pray for him.

  32. Stephanie Rainey

    November 14th, 2010 at 2:51 pm

    I am over the moon thrilled by the pictures and the progress you guys have been so sweet to share with us. I am praying that the little boy down the hall gets put in a room with another child so that he won’t be alone. I don’t know what he is in for but the daily trauma of not having a loved one near to comfort him will last a life time.

  33. November 14th, 2010 at 4:24 pm

    Amazing…gave me chills and braught tears to my eyes. Absolutely incredible!

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